Ben and Logan had their first day of school today. Sean starts on Thursday for staggered entry for Pre-K students. Ben's bus was too late for us to wait for it, so after 50 minutes of waiting impatiently, I drove him to school. It was so easy, it made me think about making that one mile drive each day. This year, I am trying out a new plan. I will pick Ben up from school at 3:15pm every day to give him time to eat and use the bathroom before therapy. In years past, it has been a mad rush to get everything done and if the bus was late, it was stressful. Logan and Sean need to be picked up at the same time Ben is "supposed" to get off the bus. By doing it this way, Ben will get to walk with me to Logan and Sean's school to pick them up. I think he will enjoy being a part of this ritual. Hope all goes well for your first days of school!
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.