This weekend will be the first time I will miss a holiday with the kids. I am going away with my mom and sister to celebrate my mom turning 60. This is a photo of Ben from last year - Easter morning, dressed in his new shirt and ready to find eggs in the yard. I just hope the Easter Bunny remembers to visit our house this year...
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.