Ben had the opportunity to go down the water slide today. We have been going to this pool for three years and have thought about getting Ben down the slide, but the conditions were not always right - too hot, not enough adults to help or life guards were not in favor of the idea. Today, everything lined up and we were given the thumbs up for Ben to go down the slide one time. I was at the top of the slide and should have taken the photos from there - I had a perfect view of a smiling kid slowly going down the slide.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.