At the time that I write this, Ben is in his 6th day in underwear. If you have followed us from the beginning, Ben started serious toilet training last August, at the end of camp. He wore a pull-up over underwear. For the entire school year, he has done an incredible job of using the toilet, staying dry and even trying to let us know when he needed the facilities with a Big Mac button, crawling to the bathroom or just yelling his head off. At the start of camp, with the advice of Ben's behavior therapist, Ben went cold turkey wearing just underwear. He is doing a great job. And if nothing else, his little bottom has got to be cooler!
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.