I know my title probably has some of you ready to hear me rant and rave about how I need to be appreciated for all the work I do...well at least not today. (Ryan breathes a sigh of relief.) This post is about reading - just plain old reading words, like you are doing now. Logan has started reading over the past couple of months. I am overjoyed by it, so proud of him I want him to show everyone his new skill. I am writing about this because I do not hear people talk about their child learning to read. Am I missing something? Is my appreciation so much more because of Ben's situation? Do people just not talk about it because it is considered bragging? I wish someone would help me out here. Learning to read was not on my radar as something to be excited about. Of course, everyone asks about rolling over, sitting up, first steps and first words. But never did anyone warn me that hearing my child read an entire book would make me burst with pride. Logan reads signs when we are
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.