While vacuuming, I heard a noise and chose to ignore it. Then something tugged at me to go investigate the source of the noise. I found Ben pinned underneath the TV and table. I lifted it all up, and pushed him with my foot, out of the way. Sometimes when Ben is wild and we cannot watch him every minute, we strap him into a chair. I always feel terrible doing it. Ben had been strapped in the chair while I was cleaning, and the guilt was eating at me. So I got him out. It was not ten minutes when I heard the bang - and it did not even dawn on me what could have happened - I kept vacuuming for another couple of minutes. Ben likes to kneel at the table in front of the TV to get a very close and personal experience with the movie he is watching. This one being a home movie, he must have wanted to get real close. Ughh! The damage - a busted lip, swollen nose and demolished brand-new 32" flat screen TV, a recent gift from our neighbors. So what have I learned? Safety is going
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.