About a week ago, Ben’s occupational therapist taught Ben how to take his shirt off. Immediately after the session with the OT still present, Ben crawled into the kitchen and proceeded to show me how he can take off his own shirt. Very impressive! Last night, right before bedtime, Ben did his shirt trick again with a pajama top. Just took the darn thing off without any help. Needless to say he went to bed shirtless. This time Ryan got to appreciate our little Houdini. And then this morning, I shared the story with Logan, who appreciates when Ben learns a new skill, and he started chanting: Take It Off, Take It Off. Well, at least Logan was showing support.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.