As if the Disney World vacation was not enough, the Kyle Busch Foundation gave Charlotte area Grin Kids' families tickets to the Dollar General 300 Race . Although Ryan had been twice to a race, the rest of our family were newbies. Ben loved the excitement and the noise, but eventually he was too excited to even sit. Ryan took him for a bite to eat and a stroll around the speedway while I stayed with the other boys who were mesmerized by the ecperience. When we caught up with eachother - I noticed Ryan taking money out of Ben's pockets. To my amazement, Ryan told me that two different and random people gave Ben money - totalling $25. Although we laughed, I am not sure how either one of us felt about it. A discussion for another day. We had a great time - it was truly an experience and I was glad to see what it was like. The noise was overwhelming, even with ear plugs. Unlike other sporting events, there's little cheering or yelling since noth...
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.