Last summer when we used the Landeez Chair with Ben at the beach, we needed to purchase a small belt to keep him in place. We bought it at a small hardware store for $3 - fastener and all. A few weeks ago when I took Ben for a haircut , I remembered the belt was still in the trunk. If you have seen the photos of Ben getting a haircut, you know he can hang upside down, turning a regular visit to Supercuts into an Olympic event for me. Ben would leave with a new haircut and I'd have sore muscles and a bad back, and possibly a few scissor stabbings. This time, we used the belt around his waist and it was just enough restraint to keep Ben in line. He realized about 1/3 of the way into it that he was not going to get out of the situation so he sat back and watched Bob the Builder on the small DVD I brought. Not that I am counting, but one point for me.
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.