Hello, my name is Kynna Burney. I met Ben my 7th grade year of middle school in gym class where we were able to pick our peer buddies for the year. In the gym class we were picking our buddies. Everyone was going for Ben but Ben wasn’t going for them. Finally, when it was my turn, I went for Ben and he immediately lightened up and was extremely happy. He is nonverbal, so he started getting loud, almost like a scream, and flapping those hands letting them know he wanted me. It was like we were meant to be. Everyone was surprised as to why all of a sudden he was so happy to be with me because when I tell you he had a mean face on the whole time (LOL) but as soon as I started towards him that frown turned upside down. It was like he had me already picked from the time he saw us lining up. He was just waiting for me to come over. From that day, I continued to visit him in school and go on field trips with him. Our bond just kept getting stronger by the minute and even once we left middle
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.