This article is in the January 2016 issue of Charlotte Parent, Carolina Parent and Piedmont Parent- but get it here first:
And hoping you will not need the information in this article!
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.
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