For two years, we have steered clear of jolly Old St. Nick. After the incident at the Shriner's Christmas Party in 2012, we did not want to risk our standing with the big guy at the North Pole. It seems, however, that Santa has let bygones be bygones. We visited Daniel Stowe Botanical Gardens and Santa was there visiting. I knew Sean, our six year old would agree to a visit, that Logan would say no, but was completely surprised when Ben went nuts with excitement when he saw Santa. With trepidation, we approached Santa with Ben. Ben savored every moment with this gentle and kind Santa. It was not crowded, and there was no pressure to rush the experience. When we were not sure if Ben was going to cuddle with Santa or pull off his hat, we said our goodbyes. (Well, not until I sat on Santa's lap and took a photo. How many other chances will I have to do that?)
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.