Father Knows Best

If you have been following closely, you will know that we have been experimenting with Ben's nutrition in hopes to eliminate constipation, decrease hyperactivity at night and increase sleep productivity. In addition to Ben's nighttime antics, he started about a month ago, tearing off his pull-up, typically leaving a horrible mess of pull-up pieces everywhere. In my last post, The Real Houdini, I admitted that, we as parents, had lost that battle.

But it is the war we are after and Ryan, in his infinite wisdom suggested that the reason for the pull-up disappearing act was that they were too tight. I had my doubts, but being of a gender with different parts, I did not have much experience in this department and found it hard to argue. With no other solutions on the forefront, I picked up larger pull-ups, adult size small.

It has been five nights with the new pull-up and it has remained on his body each night. We both get points - Ben for communicating his discomfort and Ryan for understanding these non-verbal cues.

Parents - 1

Ben - 2

Comments

Parenting an Adult Child with Disabilities

"Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light. He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

Make this Race Amazing

Mecklenburg County's Therapeutic Recreation's Amazing Race is Saturday, March 24, 2012. All funds raised go directly to the scholarship fund for summer camp. Summer Camp is 8 weeks long with over 150 children with special needs participating. Last year, over $6,500 was given away in scholarships. In times of budget cuts and loss of resources, Amazing Race is a creative way for the staff to raise money for the children who may need financial assistance attending camp. I will be posting photos from 2011 camp. I am only posting photos that do not show faces of the children, but you will get the idea about how much they enjoy the activities. You don't have to see their smiles, you just have to feel them. The staff have sent me their thoughts on how they feel about camp and I will be posting those as well. Most are trained as recreational therapists and have devoted their life's work to helping children and adults with special needs learn skills, make friends, de

eSpecially Ben

Search This Blog