We had a great summer. Last year, I made the decision to keep Ben out of camp and home with us. We did it, with the help of Kim, who has been with our family since Ben was 4 years old. Each day, we planned some new adventure for the boys. We swam, hiked, picnicked, traveled, visited friends, watched movies and discovered the $1 ice cream sundaes at McDonald's way too late in the summer. That's Logan and Ben is about to wake him up. Logan and Sean liked having Ben around and Ben certainly seemed happier spending his time with us. Ben was engaged in the activities we did together. He observed activities and when he was ready, put himself right in the middle. On days we wanted to stay home to relax, and Ben wanted to go out, Kim gave him a choice of activities. He often chose walking the mall or going to Imaginon , a large children's library. On most of those days, he also visited Dunkin' Donuts, TCBY, McDonald's and other tasty places. If it weren'...
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.