"Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.
so cool! I bet everyone was so proud of him!
ReplyDeleteHoly Cow! I am in tears watching that!
ReplyDeleteEveryone is really proud of him - even strangers at the pool understand that he is doing something special. And he does not want our hands on him any more - he pushes us away.
ReplyDeleteWow! That is awesome! Ben is walking and getting around in that pool so spectacularly! My son, who has ACC, has also been doing aquatic therapy for awhile, and I have been astounded and so surprised by the many positive results.
ReplyDelete*cheers for independent Ben, who looks like he is having a terrific time playing in the pool*