Skip to main content

When It's Just Not Working


Since March, we have had a revolving door of staff working with Ben. Rather than discuss the gory details of each case, I decided to pass on what I learned from the experience.

Having staff in our home is both a blessing and a curse. It is wonderful to have someone to help with Ben's personal care and independent skill building. It gives me a break and also helps Ben work on skills I may not have the time to do or are not skilled at teaching. However, it also means that there is a loss of privacy within our home. Feeling comfortable with the people who work with Ben is imperative to me. His safety is my first priority. It is not only what a staff person may or may not do, but it is the gut feeling I get when it does not feel right. I may not be able to put my finger on the problem, but that should not discount my feelings.

These are a few things I have learned, and I would love for others to share any tips or ideas they have picked up through their own experiences.

  • Trust your instincts and talk about any concerns with your spouse. Getting someone else's viewpoint can help you see the situation from another perspective.
  • Try any new staff for one month, scheduling only a few hours to get a feel for the person's style. Let them know ahead of time what you are doing. This gives them an out also. They may also think this is not a good fit after a trial period.
  • It does not have to be personal. Staff may not fit for your family's style, but might work well in another setting.
  • When things are not going well with staff, it is normal for the parent to feel stress, anxiety about the situation, and uneasiness with how to handle the working relationship. These are signals that perhaps something needs to change.
  • Use resources around you for support - hiring agency, case workers and other people you trust. They are trained to help and most likely they have dealt with these types of situations in the past.
  • If it is possible to discuss the issues with the staff person, be sure to have someone from the hiring agency involved. Document issue and include date and any specific information, if possible.
  • In some cases, speaking with the staff person will not get the desired results and you need an exit plan. How will you decrease their hours? Who will discuss this with them? 
When you do find a staff member who loves your child and are the answer to your prayers...be sure to tell them how much you appreciate their work. It is a two-way street and everyone has to feel good about the situation.


Comments

  1. Oh, I understand! We had caregivers who were nightmares (one vomited in our home while caring for Cayden and didn't tell us!), and who were heaven-sent (loving, godly, signing girls!). Some we are still close with, some were couldn't get out the door quickly enough! It is HARD to find the right fit! Good luck on your ongoing search!

    ReplyDelete
  2. It is so good to hear about your experience. I was staring to take it personally - like, What have I done? Am I too picky? etc. Thanks for sharing Shira!

    ReplyDelete

Post a Comment

Thank you for reading my post. I appreciate you taking the time to comment. If you wish to contact me directly, please let me know and I will email you.

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

Make this Race Amazing

Mecklenburg County's Therapeutic Recreation's Amazing Race is Saturday, March 24, 2012. All funds raised go directly to the scholarship fund for summer camp. Summer Camp is 8 weeks long with over 150 children with special needs participating. Last year, over $6,500 was given away in scholarships. In times of budget cuts and loss of resources, Amazing Race is a creative way for the staff to raise money for the children who may need financial assistance attending camp. I will be posting photos from 2011 camp. I am only posting photos that do not show faces of the children, but you will get the idea about how much they enjoy the activities. You don't have to see their smiles, you just have to feel them. The staff have sent me their thoughts on how they feel about camp and I will be posting those as well. Most are trained as recreational therapists and have devoted their life's work to helping children and adults with special needs learn skills, make friends, de