Skip to main content

Standing Tall

Ryan and I marvel at how each of our sons are getting bigger, stronger and wiser. It usually hits us when one of them falls asleep on a couch and we have to carry them to their beds or they say or do something that catches us off guard.

At two years old, Logan stood up for Ben when their pediatrician did not offer Ben a sticker, the usual prize after finishing an appointment. I could hear the indignation in Logan's voice even then, "Ben needs a sticker too."

This theme of not leaving Ben out has carried through to this day: Ben has a morning "To Do" list, he gets daily Class DoJo points and he has a Reward system too. All of these were prompted by either Logan or Sean. If I do not include Ben, I am quickly reminded by one of the brothers with a "how dare you" attitude.

Logan and Sean take responsibility and ownership for how to get the best for Ben so that he can succeed. They are not afraid to speak up to adults and children. They take pride in showing others how Ben's NOVA Chat or another piece of equipment works. They are the first to tell Ben to do something they know he can do for himself.

At the YMCA, I overheard a boy comment to Logan about some kid at the pool in a special chair. Without missing a beat, Logan claimed Ben as his brother and launched into a discussion about him.

On his own initiative, Logan recently taught Ben to shake hands. Teaching this skill, which was successfully mastered, had not occurred to anyone else in Ben's life.

When someone says something about Ben around Sean, I hear him yell a little loud, a little annoyed, "He's a needs kid. He has special needs." Yah, we all have those and thankfully, Ben has two brothers to speak up about them.


* Disclaimer: All of the above is true; however; I feel it necessary to add that they are still brothers and they fight with Ben too. He gets on their nerves, invades their space and sometimes ruins their toys. He does it knowingly with a glint in his eye and a smirk on his face. He sometimes adds insult to injury by laughing about it too. I guess it is just as it should be. After all, Ben is the oldest brother.

Happy Mother's Day!

Comments

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

Make this Race Amazing

Mecklenburg County's Therapeutic Recreation's Amazing Race is Saturday, March 24, 2012. All funds raised go directly to the scholarship fund for summer camp. Summer Camp is 8 weeks long with over 150 children with special needs participating. Last year, over $6,500 was given away in scholarships. In times of budget cuts and loss of resources, Amazing Race is a creative way for the staff to raise money for the children who may need financial assistance attending camp. I will be posting photos from 2011 camp. I am only posting photos that do not show faces of the children, but you will get the idea about how much they enjoy the activities. You don't have to see their smiles, you just have to feel them. The staff have sent me their thoughts on how they feel about camp and I will be posting those as well. Most are trained as recreational therapists and have devoted their life's work to helping children and adults with special needs learn skills, make friends, de