Skip to main content

eSpecially Parents September Edition: Denise's Story

Luke and I are new to the public education system in Texas. Beginning soon after Luke’s birth, we had ECI come to our house several times a week for PT, OT, deaf education, and swallowing therapy. I was able to sit in on all Luke’s sessions and knew exactly what to work on with him. Since turning three, Luke’s case was handed over to the public school system which seemed to complicate things a bit.

Since Luke’s birthday is 10 days before the end of the school year, we were able to enroll him in school and get our feet wet with the preschool program for children with disabilities (PPCD). Luke is deaf and wears a cochlear implant for hearing. Because he also has other delays, he doesn’t meet the qualifications for the deaf ed program and is in a class with kids who have all different types of disabilities. One of our biggest concerns with Luke’s development is his very limited communication. Unfortunately, none of the other children in Luke’s class are hearing impaired so it’s hard to know if Luke is in the ideal setting to promote his oral communication.

Another frustration is the change in staff. Last year I was able to sit in on a class and meet with his teacher to discuss his learning plan. Everything was going well. His teacher seemed to be patient, caring, experienced and on board with trying to develop Luke’s speech with total communication. She also gave me detailed accounts of his day and progress. I was sad to learn that this teacher was leaving just as we were getting used to her and excited to start a new school year with Luke her classroom.


Illness has also been a struggle for us since school started four weeks ago. Luke has never been in daycare before so he catches everything that is going around. The illness also passes to everyone else in the house so getting everyone, including myself, well has been my main priority this year. I’m hoping this will all level off soon so I can focus on getting Luke better settled into his new preschool program and get myself more involved in the classroom.


Now that our family seems to be feeling better it is time to get down to business. We are trying to schedule an ARD meeting (not really sure what it stands for) to sit down with the school therapists and administration. From what other families have told me this can be a very intimidating process. We’ve been through one before but had our ECI professionals attended on Luke’s behalf. I know we need to fight for more speech services since Luke can clearly benefit from this daily through the school. Right now he gets only 15 minutes twice a week. Hardly enough time to settle down an active toddler and minimize other distraction to really focus on the therapy.

We do receive speech privately for an hour twice a week but because of his poor communication skills, Luke is starting to get frustrated and has resorted to banging his head and having tantrums. I’m not too worried about OT/PT service since Luke receives more than 90 minutes of eac,h weekly through private therapy. He is also walking and has fairly
good fine motor skills.


Even though we clearly have some issues to work out, I’m glad that Luke is able to go to preschool this year. I’ve met with his teacher and she also seems very caring and focused on getting these children to learn.

New to eSpecially Parents Series? Read more here.

Comments

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

Make this Race Amazing

Mecklenburg County's Therapeutic Recreation's Amazing Race is Saturday, March 24, 2012. All funds raised go directly to the scholarship fund for summer camp. Summer Camp is 8 weeks long with over 150 children with special needs participating. Last year, over $6,500 was given away in scholarships. In times of budget cuts and loss of resources, Amazing Race is a creative way for the staff to raise money for the children who may need financial assistance attending camp. I will be posting photos from 2011 camp. I am only posting photos that do not show faces of the children, but you will get the idea about how much they enjoy the activities. You don't have to see their smiles, you just have to feel them. The staff have sent me their thoughts on how they feel about camp and I will be posting those as well. Most are trained as recreational therapists and have devoted their life's work to helping children and adults with special needs learn skills, make friends, de...

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h...