"Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.
I bet he is glad that that is over with!
ReplyDeleteOh! Reminds me of a recent sleep study that my son had. Not a fun way to spend the night-- or whole day, in your case.
ReplyDeleteYou don't know how glad he was! His smile was big and his sounds were loud.
ReplyDeleteOh no - that does not look fun. I hope it goes OK and you get the results you need.
ReplyDeleteHope you are back home and resting by now. Poor guy (and Mom), that's a lot to deal with!
ReplyDeleteHope all is well! What a good boy, mine would be ripping those wires off.
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