Skip to main content

Warning Signs

June 2010

June 2010
Hindsight is 20/20: These photos should have been our warning.

The day we arrived in NY for the Thanksgiving holiday, we saw my sister's children - Jackson, Ethan and Samantha. Samantha is two years old and loves Ben. We have been fortunate to see the cousins quite a bit this summer so the kids feel comfortable around each other. We also reinforce the relationships with family videos from our times together. Samantha has known how to say Ben's name for a long time and talks about him to my sister quite a bit. Seeing Ben is a big deal to her.

My sister does a good job talking to her kids about Ben and helping them understand that he communicates differently than other kids. She explains how Ben loves each one of them, but may express it differently.

Ben loves his cousins too. We watch the same videos and look at the same photos they do. Ben's favorite home video is Family #4 which features a mountain trip with the cousins. Ben literally gasps with excitement when he sees the first scene come on.

So when Samantha approached Ben that first day, he was just as excited, if not more, to see Samantha. And he showed it by grabbing her hair with a vice-like grip. Of course, Samantha reacted with crying and we quickly pried Ben's hands off Samantha's hair, but not before he wrenched a chunk of her hair from the roots. To say she was in pain would not do it justice. I am sure the pain was horrendous, but the fright from feeling attacked may have been worse.

I tell this story because I think we can learn from the way my sister handled the situation with her daughter. She comforted her in every way possible, made her feel physically safe by removing her from the situation and did not force her to interact with Ben. However, she did reinforce what she had been saying all along, that Ben loves her and did not mean to hurt her. It took Samantha, rightfully so, a few days to feel comfortable again around Ben. By the end of our time in NY, I believe she felt okay with him.

For me, I am reminded that when Ben gets excited around people, his way to show love can really hurt. Ryan or myself need to be involved in these interactions to make them positive for everyone.

Comments

  1. That had to be scary, although he doesn't mean it. I have to constantly remind my son to be gentle.

    ReplyDelete

Post a Comment

Thank you for reading my post. I appreciate you taking the time to comment. If you wish to contact me directly, please let me know and I will email you.

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

He Ain't Heavy, He's My Brother

After my post, Brotherly Love , I received an email from a reader who reminded me of this song. I knew the song, but had never really thought about the words and the meaning behind them. I looked it up and thought others might see the lyrics in a new light.   He Ain't Heavy, He's My Brother The road is long With many a winding turn That leads us to who knows where Who knows when But I'm strong Strong enough to carry him He ain't heavy, he's my brother. So on we go His welfare is of my concern No burden is he to bear We'll get there For I know He would not encumber me If I'm laden at all I'm laden with sadness That everyone's heart Isn't filled with the gladness Of love for one another. It's a long, long road From which there is no return While we're on the way to there Why not share And the load Doesn't weigh me down at all He ain't heavy, he's my brother. He's my brother He ain't h

Make this Race Amazing

Mecklenburg County's Therapeutic Recreation's Amazing Race is Saturday, March 24, 2012. All funds raised go directly to the scholarship fund for summer camp. Summer Camp is 8 weeks long with over 150 children with special needs participating. Last year, over $6,500 was given away in scholarships. In times of budget cuts and loss of resources, Amazing Race is a creative way for the staff to raise money for the children who may need financial assistance attending camp. I will be posting photos from 2011 camp. I am only posting photos that do not show faces of the children, but you will get the idea about how much they enjoy the activities. You don't have to see their smiles, you just have to feel them. The staff have sent me their thoughts on how they feel about camp and I will be posting those as well. Most are trained as recreational therapists and have devoted their life's work to helping children and adults with special needs learn skills, make friends, de