A helper at this year's Shriners Christmas Party made this for Ben. More on the Shriners and our adventures at the party later this week.
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These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.
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We've never yet made it to any of our hospital's parties -- always had someone sick so far. Maybe next year?
ReplyDeleteThat's one stylin' hat -- I hope Ben had a grand time at the Christmas party!
~Michelle @ 5MFSN