"Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.
What a wonderful story -- I am glad there are people like that in the world!
ReplyDeleteAnd that is one cute idea for an appreciation card for a teacher. Does he like having his hands painted? Our little guy only likes it if it is *his* idea.
Ben does not love arts and crafts - he tolerates it. He has gotten more patient with painting and crayons as he's gotten older. But his preference would be to tear the paper and eat the crayon.
ReplyDeleteBen's teacher has taught me that even if he just helps in one way, like handing the macaroni or whatever the piece is to the teacher, then she glues it, then he has helped with the project. This has helped me create expectations of Ben that he can tolerate and meet.
I didn't know last week was teacher appreciation week! What a creative way to say thank you :) Great work, Ben!
ReplyDelete~Michelle @ 5MFSN