Skip to main content

Chuck E. Cheese, Bob the Builder & Giving Thanks


Ben was invited to a Chuck E. Cheese birthday party last Saturday. He was using his walker to get around. Within the first few minutes, I spotted the Bob the Builder/Scoop Ride and led Ben in that direction.

Let me give you Ben's history with Bob and this ride. Ben is the BIGGEST Bob the Builder fan that has ever lived. He owns just about every movie, piece of clothing, bedding and doll, and has seen "Bob Live" on stage. At the last Chuck E. Cheese party he attended, Ben spent two hours on the ride, and he gave Bob a big kiss at one point. I was not there for that party so I wanted to see Ben's reaction today.

So back again to Chuck E. Cheese. When Ben was about four feet from the ride, he stopped and decided he did not need a walker. He let go and took 2-3 steps on his own before falling and hitting the ride with his head. Let me say it again: Ben took 2-3 steps on his own.

I was behind Ben when it all happened, and I was concentrating on him falling that I really missed the steps. My brain was telling me something great happened, but I was having a hard time processing it all within the very short time frame. And I had no one I knew to ask about what just happened. There were many people around, but all were strangers. As if someone heard my thoughts, one of the strangers who witnessed it said, "He took steps."

I wish I had thought to thank the woman who was there for sharing those moments and words with me. If not for her, I would have brushed off the incident as just a fall. I would have pushed it to the back of my brain because I did not really see it all and could not have made sense of it. If not for the kindness of this woman, it would have been a missed moment. I think she knew that this was something to celebrate.

Happy Thanksgiving!

Comments

Popular posts from this blog

Parenting an Adult Child with Disabilities

  "Parenting an Adult Child with Disabilities" is a series on eSpeciallyBen. As Ben approached 18, it was clear our role changed as parents. We needed to help Ben transition into adulthood. These stories are meant to assist other families who face, or will face, some of the same challenges. Talking About the Future Guest Post - Matt Wilson Legal Guardianship, Medicaid and SSI Researching Group Homes Questions to Ask at a Group Home Visit Referral Packet for Group Homes Getting Assistance from a Care Manager From Group Home Placement to Discharge Reaching for Independence

Make this Race Amazing

Mecklenburg County's Therapeutic Recreation's Amazing Race is Saturday, March 24, 2012. All funds raised go directly to the scholarship fund for summer camp. Summer Camp is 8 weeks long with over 150 children with special needs participating. Last year, over $6,500 was given away in scholarships. In times of budget cuts and loss of resources, Amazing Race is a creative way for the staff to raise money for the children who may need financial assistance attending camp. I will be posting photos from 2011 camp. I am only posting photos that do not show faces of the children, but you will get the idea about how much they enjoy the activities. You don't have to see their smiles, you just have to feel them. The staff have sent me their thoughts on how they feel about camp and I will be posting those as well. Most are trained as recreational therapists and have devoted their life's work to helping children and adults with special needs learn skills, make friends, de...

Parenting an Adult Child with Disabilities: From Group Home Placement to Discharge

  Last August, we moved Ben into an alternative family living (AFL) placement, about 90 minutes from our home in Charlotte. It was a three-bedroom house and Ben was given the largest bedroom with its own bathroom.  A typical AFL in North Carolina operates like this: a person with disabilities, the client, moves in with another family, couple or an individual. The client lives in the family’s home and the family receives payment in return for housing, feeding and caring for the client.  Ben’s AFL was unusual: A couple with extensive caregiving experience wanted to run a three-bed group home but needed to apply for the license through the state. They were willing to take Ben as the first resident in a house, separate from the one they lived in. The plan, according to the couple, was to get approval for the group home within a couple of months.  We ordered Ben a double bed, headboard, 54-inch television, new sheets, towels and blankets. Friends helped us move him in....